View in a browser August 2024 CEO updateWelcome to Down Syndrome Australia’s August e-news!We are still buzzing from the incredible World Down Syndrome Congress 2024 we hosted in Brisbane last month. Over four memorable days, nearly 1,000 delegates came together to learn, celebrate, connect and dri
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August 2024

                                                                                                               




This is a banner image that says Down Syndrome Australia - August Communty News. It features a photo from World Down Syndrome Congress 2024


CEO update

Welcome to Down Syndrome Australia’s August e-news!

We are still buzzing from the incredible World Down Syndrome Congress 2024 we hosted in Brisbane last month. Over four memorable days, nearly 1,000 delegates came together to learn, celebrate, connect and drive positive change for our community.

Hosting Congress is a standout moment in DSA’s history and the result of three years of hard work. A heartfelt thank you to everyone who attended and to all who made this event possible: our dedicated patrons, committee, staff, volunteers, sponsors, speakers and special guests. 

Watch some of the highlights of Congress by clicking on the image below:

This is a still from a video on World Down Syndrome Congress. It features Adam Chrisp. A man with Down syndrome who spoke at the event.


You can also read some of the standout moments from Congress in this article.


For more detailed stories, including interviews with some inspiring Congress speakers, look out for our special Congress edition of Voice in October. Also, stay tuned for a series of educational videos shot at Congress in the coming months. These will feature experts, self-advocates and families discussing topics like education, health, employment and self-advocacy.


Although Congress has wrapped up, our advocacy work continues. Just yesterday, we addressed the newly released findings of the Disability Royal Commission. Read more in the next story. We also discuss the recent Report on the Department of Home Affairs Review of Australia’s Migration Health Requirement (MHR), which unfortunately falls short of what is needed for people with disability. 

We look forward to continuing our advocacy efforts and keeping you updated on our progress.

Sincerely


Darryl Steff
CEO, Down Syndrome Australia


This is a photo of Down Syndrome Australia CEO Darryl Steff

Advocacy

This is a photo of Darryl Steff, Rachel Spencer and Olivia at the Royal Commission

Updates on advocacy and legislative changes

Yesterday, the Federal and State/Territory Governments released their responses to the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. DSA was very disappointed that the Federal Government only agreed to 13 of the 222 recommendations, but has agreed in principle to another 117. DSA has been advocating strongly to end segregated education, segregated employment, and ensure fair wages for people with disability. The mixed response to the Recommendations in this areas provides no clear pathway to ending segregation in these settings. DSA has provided an initial response to the Federal Government announcement through the media - see our social media or the link to our media release below. DSA will be reviewing Federal, State and Territory responses closely and will soon provide a guide for people with Down syndrome and their supporters, outlining our key priorities.


In other news, the new NDIS legislation was sent back to the Senate Committee for further review in June. Our CEO, Darryl Steff, spoke at the public hearings on 24 July, addressing how the changes could impact people with Down syndrome. The Senate Committee’s report will be published early this month, with a debate and vote to follow. 


Finally, DSA has been working hard with Australian Lawyers for Human Rights and other disability representative organisations on the Welcoming Disability campaign. We're pushing for needed changes to Australia's migration health laws. While some progress has been made, we believe more is needed.

It’s disappointing that there’s still no clear plan or timeline for the urgent reforms needed to fix the harmful impacts of current laws on people with disability. 


Read more about our campaign and our joint media release here.

Media Release - Disability Royal Commission
Media Release - Migration

Opportunities

This is a banner image of a lady with Down syndrome holding a sign that says "Survey". She is smiling.

We want to hear from people with Down syndrome!

Help us by doing a short survey.

In this survey, we ask questions about

  • finding information
  • getting support.

We want to know about:

  • what works wells for you
  • what does not work well
  • any problems with getting the right support.

This will help us to provide the right support and information for people with
Down syndrome.

If you have questions, contact Down Syndrome Australia:

Phone: 1300 344 954
Email: info@downsyndrome.org.au

The survey is in Easy Read. It can take about 10 minutes. 

You can ask someone you know to support you.

Take the survey


This is a photo of a lady with a teenage female with Down syndrome using a laptop

Join the first Centre of Excellence Conference!

The first-ever annual conference of the National Centre of Excellence in Intellectual Disability Health is on in August.

The conference is free and online. 

When? 

Wednesday 21 and Thursday 22 August. 

What? 

Get updates on the Centre's work and important information about intellectual disability health. 


The conference will be recorded. You’ll get links to the recordings and transcripts after the event. 

Who it’s for? 

Everyone involved in the healthcare of people with intellectual disability, including: 

  • People with intellectual disability, including First Nations people 
  • Supporters, friends and family members 
  • Disability professionals and advocates 
  • Health and allied health professionals 
  • Academics and researchers 

Don’t miss out—register now! 

Register for the Conference 


This is a photo of a teenager with Down syndrome speaking with a female

Paid online co-design opportunity for NDIS participants

Are you an NDIS participant that has experience with:

  • Employment Support for School Leavers
  • Supported Independent Living
  • Younger People (<65yrs) living in Residential Aged Care

Join us in August, September and October, to explore a different way for NDIS to pay providers!

If you or someone you know is interested and would like to register your interest, or have further questions, please email admin@purpleorange.org.au or phone 08 8373 8388.

Please note further screening and eligibility criteria will be discussed after expressions of interest have been collected.

View in Easy Read

New resources

This is a photo of 4 women with the words Wellbeing, support, staying safe and families under each person

The Neve Project on violence prevention

Women With Disabilities Australia has recently launched Neve. This new platform is a safe and inclusive space for women, girls, and gender-diverse people with disabilities.

Neve tackles important issues like discrimination and violence, while also celebrating stories of personal growth and empowerment. It provides useful information and support for individuals, families and professionals, all without judgment. Neve can be viewed in Plain English or Easy Read.  

Explore Neve to see how it can offer support and guidance for you or someone you know.

Discover Neve
Facebook
Instagram
LinkedIn
Twitter

Down Syndrome Australia is the national peak organisation for people with Down syndrome and their families. We work closely with the State and Territory Down syndrome associations to provide advocacy, support, and information.


Down Syndrome Australia is proud to receive support from the Australian Government's Information Linkages and Capacity Building (ILC) Grant program, in order to deliver a wide variety of projects to support people with Down syndrome, their family and supporters.



Please get in touch if you have feedback you would like to share with us. 

You can reach us via email at info@downsyndrome.org.au


Down Syndrome Australia and its members acknowledge the Traditional Custodians of Country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.


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