Read the latest Down syndrome news and updates and find out about our resources, information and advocacy across Australia.
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March 2023

 

                                                                                                               




Down Syndrome Resource Hub

 

Down Syndrome Australia is the national peak organisation for people with Down syndrome and their families.  We work closely with the State and Territory Down syndrome associations to provide advocacy, support, and information.

 

Please get in touch if you have any feedback you would like to share with us. You can reach us at info@downsyndrome.org.au.

 

 
A young woman smiling

 

 

World Down Syndrome Day

 

World Down Syndrome Day is only a few weeks away.  On this day, people with Down syndrome and their supporters raise awareness and advocate for the rights, inclusion and well-being of people with Down syndrome.   

 

There are a number of events and activities to celebrate the day.

World Down Syndrome Day in Canberra 

 

On World Down Syndrome Day, we are hosting a Morning Tea at Parliament House to raise awareness of the issues on which Down Syndrome Australia is advocating for at a National level.  Our self-advocates will also meet with Ministers and key Departmental staff the following day to speak about what is important for people with Down syndrome. We are grateful to the Sherry Hogan Foundation for funding this self-advocacy forum. 

 

 

 

 
A young girl holds up a message for World Down Syndrome Day

 

 

Our World Down Syndrome Day stories  

 

This March, we are sharing stories from across Australia in the lead up to World Down Syndrome Day. Follow us on social media to see messages shared by people with Down syndrome about things that matter to them.   

 

Please share our stories far and wide to help raise awareness! You can find our stories throughout March on our social media channels: 

 

  • Facebook 
  • Instagram
  • Twitter 
  • LinkedIn

 

 

 
World Down Syndrome Day Conference

 

 

World Down Syndrome Day Conference 

 

On 21 March, the Down Syndrome International network will host the 12th World Down Syndrome Day Conference at the United Nations headquarters in New York.  

 

At this conference, people with Down syndrome and disabilities, supporters and advocates, government and NGO representatives will discuss Legal Capacity and Supported Decision Making. They will be sharing knowledge, experience and good practice from countries around the world. 

 

Find out more about the conference on the DSI website: 


 

About the Conference

 

 

 

 

 
Caitlin Woolley

 

 

Being a Health Ambassador

 

Caitlin Woolley is the Tasmanian Health Ambassador for Down Syndrome Australia. She shares what she loves about her work and why it is important. 

 

“It matters that people with a disability be included in their community, their employment and in health. This is the future I want for Australia.” 

 

Read Caitlin’s story here: 


 

Caitlin's Story

 

 

 
Becoming a Teenager resource


 

Becoming a teenager resource

 

Becoming a teenager is an exciting time in a young person’s life. This age can also bring administrative challenges for parents and supporters. Our latest resource covers key administrative tasks that families and supporters can assist with during the teenage years.

 

Find our resource here:


 

Get the resource

 

 

 
World Down Syndrome Congress 2024

 

 

World Down Syndrome Congress 2024

 

The World Down Syndrome Congress will be happening in Brisbane from 9 - 12 July 2024.  Over the coming months we will be releasing information on the program, registrations and how you can get involved.  

 

We look forward to seeing you in Brisbane! 

 

Register your expression of interest on our WDSC website to stay up to date:

 

 

Congress website

 

 

 
SA information session

 

 

South Australia – new parent and early years session

 

We are hosting an Adelaide information session and morning tea for new parents and parents in the early years.  Join our Information Officer, Samantha, child speech pathologist Lara, and public health educator, Jen, who are parents of children with Down syndrome.  

 

This session is for families and caregivers of babies and young children aged 0-3 with Down syndrome. We will discuss connecting with your child, ways to foster communication and more. There will also be time to get to know other new parents.  

 

Join us in Adelaide on Saturday April 15th from 9.30 am - 12 pm.  

 

For more information, contact Samantha at infosa@downsyndrome.org.au   

 

 

 
Data report on a laptop screen

 

 

NDIS Review

 

The Government announced a review of the NDIS in October 2022.  The Review will look at the design, operations and sustainability of the NDIS. It will also look at ways to make the market and workforce more responsive, supportive and sustainable. 

 

DSA continues to provide input into the Review through various forums and formal submissions to the Review.  We will be working with the State and Territory Associations on these submissions to ensure that they reflect the experiences of people with Down syndrome across Australia.   

 

You can email us directly at info@downsyndrome.org.au with any issues you want to raise with us.  

 

You can also make submissions directly to the NDIS Review on their website: 

 

 

NDIS Review 

 

 

 
Prescribing medication to people with co

 

 

Women with intellectual disability: your views on contraception 

 

3DN UNSW are studying how women with intellectual disability use contraception. They are putting together a community advisory group to share ideas on how to improve this study. 

 

You can become a community advisor if: 

 

  • you are a woman with intellectual disability  
  • you have used the types of contraception described in the study.

 

You can also get involved if you are a close family member and carer of a woman with intellectual disability who has used these types of contraception. 

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For more information, contact Yunhe at yunhe.huang@unsw.edu.au.

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An easy read flyer is available here: 

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About the study

 

 

 

Stay connected

 
Down Syndrome Australia is active on social media and regularly shares the latest news on advocacy issues, new resources and information. We also celebrate our national community through sharing stories about people with Down syndrome and their families.

 
You can follow us on:

 

 

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Down Syndrome Australia, 552 Victoria Street, North Melbourne, VIC, 3051

Down Syndrome Australia, 552 Victoria Street, North Melbourne, VIC, 3051


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